Nathe18
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Newcomer
since ‎2024-02-07
‎2024-02-07

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The Zoom Community will be placed in read-only mode January 9th, 2026 through January 22nd, 2026 to deliver you a new and improved community experience!

The community will still be accessible, however, the creation of any new discussions or replies will be temporarily unavailable. We appreciate your patience during this time.

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The ATXPC Foundation is a non-profit company representing the needs of myself and thousands of other patients who suffer from this rare disease. The ATXPC Foundation intends to use zoom in order to host gatherings with other patients so that we can s...